Just got back from my hospital appt to see the Derm nurse. My blood tests were all fine and my liver hasn’t been affected so I’m pleased plus I don’t have to have anymore until the end of my treatment.
I told the nurse about this site and also the Aquaphor balm and she said she would recommend it to her other patients.
My skin has been quite bad with several spots on my face,jaw and my neck. I also have an itchy rash on my neck which she said is another side effect – joy!
She said I wouldn’t see a huge improvement until about 8 weeks 
I still get massive headaches and have an achy back and big toe joints but she said just to take painkillers.
Unfortuanately one of my biggest faults is I always squeeze any large spots, I know I shouldn’t but I can’t bear the swollen feeling. Covering them has been a challenge as the scabs always peel in the afternoon as my skin dries but bare skin isn’t an option when I’m at work.
Luckily my scalp and body are only feeling a bit dry so with only my face to deal with
I’m trying to remain positive,12 weeks to go……….
Hope everyone else who reads this site is bearing up!
Louise x
hi louise,
i went to my derm tuesday and got a month worth of 70mg.
she was really pleased with how well ive been doing. she also said that because i see me every day i dobt notice the difference but other people will. made me feel really posative because i didnt mind so much how i look but always hate the thought of others looking at me and laughing or judging me.
face is dry but i think ive made a break through – nivea visage q10 anti wrinkle cream. its amazing! before all i could use to stop the dryness was oilatum, but i put this on when i had a bath nearly 2 hours ago any i dont feel dry at all.
she said by next month it should be all clear so am feeling really good.
only got one big spot at the mo on my chin under my neck.
am really excited about finishing hopefully only need the rest of this month and the month after.
am looking forward to being able to go swimming again and wearing strappy tops and not worrying about people starting at my chest and back.
keeps me going knowing i can vent on here, i know my bf listens to me and he had bad sking when he was younger but from a womens point of view i dont think he quite gets it sometimes
- lydia on May 3, 2012 at 9:59 pm